For those of you who know me, you’ll know me and my family have been through a traumatic time. For those that don’t, and for those who always wondered how it really was, and still is for me, I’ve written my story. It’s one I’ve been meaning to write since I started blogging eight months ago, but have struggled to start. I have decided to write it all into a book so it can be read as a whole. You see William isn’t my first child, he’s my second, and I have actually given birth to five children – I just have three live children.
When I had my first child, Amy, there was a nagging feeling throughout my pregnancy that something wasn’t quite right. On the first scan, I was so relieved to see an actual baby in there, but from the scans I had seen as part of my Midwifery training, the baby didn’t seem as active. I thought it was just sleepy, which some are. I had all the tests available and all was well on the 20 week scan. After she was born, I noticed she stuck her tongue out a fair bit and kept it out whilst sleeping. Other than that she seemed normal and had no problems feeding. I still couldn’t shake the feeling I had, and postnatal depression didn’t help.
It just goes to show that a mother’s instinct is always right, if you think your child needs help or there’s something not right, always check and see your Doctor. 9 times out of 10 it’s normal, but a mother usually knows.
Her tongue was often out like this, when asleep and awake, everyone including health professionals told me it was normal
Eventually, after a long road, we got a diagnosis of Tay Sachs Disease. There was nothing anyone could do to cure or prevent the disease, but that’s not true of all diseases and syndromes, so trust your motherly (and fatherly) instincts!
For the full story, and to read the twists and turns my life took to give me my beautiful healthy babies, you can read my book The Gift I Couldn’t Keep on Amazon Kindle.
